Why Participate in ICARE?

You and your family may or may not benefit directly from your participation in ICARE; however, by participating in this registry, you are helping provide information that will be useful to:92092900

  • Describe the natural history of cancer development, tumor progression and response to treatment in hereditary cancers
  • Describe the effects of surveillance and prophylactic interventions on cancer detection and development in individuals at risk for hereditary cancer
  • Describe the effects of the cancer genetic counseling and testing process on individuals at risk for hereditary cancer

ICARE provides participants with periodic updates on the latest scientific findings about clinical cancer genetics and new research protocols or projects for which they may be eligible through newsletters, electronic information transfer, and/or other approaches.

Who Can Participate?

  • Men and women
  • Aged 18 or older
  • Have a personal and/or family history of cancer


Enroll Now!


What Will Participants Be Asked to Do?
Participation in this study includes completion of one or more of the following:

  • Informed Consent form
  • Initial Questionnaire
  • Follow-up questionnaires to gather updates to your personal and family history
  • Provide copies of your genetic test results and family tree (if applicable)
  • Donating a saliva sample (optional)