“To end the cycle of inherited cancer through research, education, and engagement”

Through the Inherited Cancer Registry (ICARE), we have partnered with thousands of participants, and many healthcare providers, advocacy groups, and genetic testing laboratories to contribute to making progress in the field of inherited cancers. See what our participants have to say about us:

“As much as it might seem frightening to join a registry like this, I am grateful for the opportunity to help pay it forward by supporting inherited cancer studies in the hopes we can all live well and have long, healthy lives.”
– Terry Arnold (BRCA1)

“What once felt overwhelming now feels purposeful as I manage my care and help others do the same, all thanks to ICARE’s reliable and easy-to-understand resources.”
– Sara Kavanaugh (MSH6 & CHEK2)

“I love how the [ICARE] newsletters highlight the publications that come from updates from study participants, including my own.”
– Monique Tiffany (BRCA1)

Why Did We Start ICARE?

We started ICARE in 2010 to contribute to ending the cycle of inherited cancer through research, education, and engagement. By participating in our registry, individuals can:

Be a part of new discoveries

Get personalized care updates

Find out about other studies

What Resources Do We Offer?

Website

Use our search tool in the upper right-hand corner to find information

Social Media

Follow @inheritedcancer for stories, research advances, and guideline updates

YouTube Channel

Join genetics experts as they discuss important topics like updates to guidelines and insights into specific inherited cancer genes

Newsletters

Published twice per year to provide care updates, research updates, and new opportunities

Virtual Provider-Focused Case Conferences

Monthly forum for providers to come together to learn from experts in the field and present cases for feedback

The ICARE Community

Thousands of participants and providers have partnered with us: