Enroll in ICARE Now!

“To end the cycle of inherited cancer through research, education, and outreach”

To join our registry, please complete one of the below online Informed Consent Forms. Once you complete the Informed Consent Form, you will be automatically directed to the online Initial Questionnaire. You may choose to complete the questionnaire immediately or save and return at a later time. If you have any questions regarding participation, or wish to complete the Informed Consent Form or Initial Questionnaire on paper, please fill out a participant contact form and a member of the study team will be in contact with you shortly.

Enroll Now (English)
To view and download a copy of the English Informed Consent Form, please click here.

Enroll Now (Spanish)
The Spanish Informed Consent Form is temporarily unavailable.


There is no cost to participate and communications can be conducted via phone, email, or mail.

Who Can Participate in ICARE?

  • Men and women
  • Aged 18 or older
  • Have a personal and/or family history of cancer

What are the Benefits of Participation?

  • Bi-annual newsletters outlining clinical and research updates for those with inherited cancer predisposition
  • Family sharing letters to aid in sharing genetic test results with family members

What Does ICARE Participation Entail?
Participation in this study includes completion of one or more of the following:

  • Informed Consent form
  • Initial Questionnaire
  • Follow-up questionnaires to gather updates to your personal and family history
  • Provide copies of your genetic test results and family tree (if applicable)
  • Donating a saliva sample (optional)