In a recent study among 33 individuals aged 15-39 years old with Li-Fraumeni syndrome, key factors in disclosure to new partners were:
- If they thought the information was relevant to them (e.g., future risk to children)
- Traits of partner (e.g., trustworthiness)
- Relationship quality (e.g., closeness)
Disclosure was a process often done early to fulfill moral obligation and emotionally self-protect from future rejection.
Why is this important?
- The study demonstrates a need to support these young individuals with Li-Fraumeni syndrome
- This could be done through providing opportunities to discuss, normalize, and try to help address challenges with disclosures in new romantic partnerships (e.g., peer support groups, psychotherapy)
Learn more at https://pmc.ncbi.nlm.nih.gov/articles/PMC12423177/
Reference: Rising et al. Fam Cancer. 2025;24(4):71. PMID: 40928581.