Our team recently published “Sharing Genetic Test Results with Family Members of ππππ, ππππ2, ππππ2, and πππ Carriers” in ππ’π΅πͺπ¦π―π΅ ππ₯πΆπ€π’π΅πͺπ°π― π’π―π₯ ππ°πΆπ―π΄π¦ππͺπ―π¨ Special Issue on Genetics. View the article available at:
https://www.sciencedirect.com/science/article/pii/S0738399120306832
Challenges and barriers to family sharing included concern for family members’ reactions, complexities of information, lack of closeness, perceived relevance, & emotional impact.
Motivators to sharing personal genetic test results with family members included health protection and prevention, moral obligation, decisional empowerment, familial ties, written resources, & contextualization for a family cause for cancer.
For inherited cancer resources that may help you share your genetic test results with family members, check out geneshare.net