Select updates outlined below. Check out the full guidelines by creating a FREE account at https://www.nccn.org/guidelines/category_2 Colorectal, Endometrial, & Gastric Cancer V1.2025 โ Released June 13th, 2025 Breast, Ovarian, Pancreatic, & Prostate Cancer V1.2026 โ Released July 10th, 2025
Care Consideration: Resources
Permanent link to this article: https://inheritedcancer.net/nlf20251/
ICARE Newsletter Fall 2025
ICARE Community Spotlight: Kathy Baker
ICARE Newsletter Fall 2025
ICARE Community Spotlight: Kathy Baker
I was only 30 when my 32-year-old sister was diagnosed with breast cancer. A couple years later, when a mobile mammography bus showed up at my law school offering free mammograms, I decided it couldn’t hurt to be screened. When my mammogram was normal, I made plans to wait until age 50 for my next …
Permanent link to this article: https://inheritedcancer.net/nlf202512/
ICARE Social Media Post August 2025
Von Hippel-Lindau (VHL)-related tumors and Belzutifan treatment
ICARE Social Media Post August 2025
Von Hippel-Lindau (VHL)-related tumors and Belzutifan treatment
A new study presented at the American Society of Clinical Oncology (ASCO) annual meeting showed that Belzutifan treatment of VHL-related tumors durably shrinks tumors and may reduce the number of surgeries needed in patients with cancers associated with a von Hippel-Lindau (VHL) gene deletion or mutation. Five-year follow-up findings showed the following response rates: Learn …
Permanent link to this article: https://inheritedcancer.net/post080525/
ICARE Social Media Post Month Year
NCCN CEG Guidelines (V1.2025): NTHL1 Post
ICARE Social Media Post Month Year
NCCN CEG Guidelines (V1.2025): NTHL1 Post
The National Comprehensive Cancer Network (NCCN) released updated Genetic/Familial High-Risk Assessment: Colorectal, Endometrial, Gastric Cancer guidelines on June 13th, 2025 (Version 1.2025). Included in these new guidelines are updates to the NTHL1 content. To read more, check out the full guidelines by creating a FREE account at: https://www.nccn.org/professionals/physician_gls/pdf/genetics_ceg.pdf
Permanent link to this article: https://inheritedcancer.net/post080425/
ICARE Social Media Post July 2025
BRCA1/2 Carriers: High Risk of Breast Implant-Associated Lymphoma
ICARE Social Media Post July 2025
BRCA1/2 Carriers: High Risk of Breast Implant-Associated Lymphoma
A new study among female BRCA1 and BRCA2 (BRCA1/2) carriers after breast cancer found that they had a 16-fold higher risk of anaplastic large-cell lymphoma associated with breast implants. This occurred in BRCA1/2 carriers who received textured breast implants as part of breast reconstruction. This is important information for BRCA1/2 carriers to know about to …
Permanent link to this article: https://inheritedcancer.net/post072925/
ICARE Social Media Post July 2025
BRCA1/2 Carriers with Breast Cancer: Removal of Ovaries and Fallopian Tubes Lowers Risk of Death
ICARE Social Media Post July 2025
BRCA1/2 Carriers with Breast Cancer: Removal of Ovaries and Fallopian Tubes Lowers Risk of Death
A new study among BRCA1/2 carriers with breast cancer showed that the overall risk of death was 48% lower for those that removed their ovaries and fallopian tubes. Specifically, these women had lower risks of: What about other health risks that can happen when ovaries are removed (causing menopause)? Why is this important? Learn more …
Permanent link to this article: https://inheritedcancer.net/post072225/
ICARE Social Media Post Month Year
NCCN Colorectal, Endometrial, and Gastric Cancer Guidelines Update (V1.2025)
ICARE Social Media Post Month Year
NCCN Colorectal, Endometrial, and Gastric Cancer Guidelines Update (V1.2025)
The National Comprehensive Cancer Network (NCCN) just released updated Genetic/Familial High-Risk Assessment: Colorectal, Endometrial, Gastric Cancer guidelines on June 13th, 2025 (Version 1.2025). There are many updates found in these new guidelines including updates to MSH2, EPCAM, PMS2, CDH1, NTHL1, and TP53 content as well as updates to the clinical diagnostic criteria for Peutz-Jeghers Syndrome. …
Permanent link to this article: https://inheritedcancer.net/post071425/
ICARE Social Media Post July 2025
NCCN Paper: Expansion of Recommendation for Hereditary Cancers
ICARE Social Media Post July 2025
NCCN Paper: Expansion of Recommendation for Hereditary Cancers
At the National Comprehensive Cancer Network (NCCN) 2025 Annual Conference, several experts in the field of inherited cancer discussed genes related to prostate, endometrial, and gastric cancers as well as how the NCCN Guidelines for Genetic/Familial High-Risk Assessment have been updated not only for healthcare providers, but also patients and their family members with similar …
Permanent link to this article: https://inheritedcancer.net/post071225/
ICARE Social Media Post July 2025
NCCN Presentation: Expansion of Recommendation for Hereditary Cancers
ICARE Social Media Post July 2025
NCCN Presentation: Expansion of Recommendation for Hereditary Cancers
Watch an exciting presentation from the National Comprehensive Cancer Network (NCCN) 2025 Annual Conference, during which several experts in the field of inherited cancer discuss genes related to prostate, endometrial, and gastric cancers as well as the expanded recommendations in the NCCN Guidelines for Genetic/Familial High-Risk Assessment. Watch now at โคตhttps://education.nccn.org/node/97031
Permanent link to this article: https://inheritedcancer.net/post070925/
ICARE Newsletter Spring 2025
Community Spotlight
ICARE Newsletter Spring 2025
Community Spotlight
As someone with two inherited cancer gene mutationsโMSH6 (Lynch syndrome) and CHEK2 โ I know firsthand the emotional and practical complexities of navigating hereditary cancer risk. My journey began without what many might consider “classic” red flags โ just a few scattered cancer cases in my family, none of which seemed connected at the time. …
Permanent link to this article: https://inheritedcancer.net/12nls2025/
ICARE Newsletter Spring 2025
Therapeutic Clinical Trials for BRCA1 and BRCA2 Carriers
ICARE Newsletter Spring 2025
Therapeutic Clinical Trials for BRCA1 and BRCA2 Carriers
We are also excited to introduce a new initiative to help match BRCA1 and BRCA2 carriers to novel treatment trials for which they may be eligible. If you are interested, please scan the QR code or go to https://redcap.link/ICAREcontactform ย where you may also provide more details about your history and ask any specific questions you …
Permanent link to this article: https://inheritedcancer.net/2nls2025/
ICARE Social Media Post April 2025
MyLynch: Personalizing Lynch Syndrome Risks
ICARE Social Media Post April 2025
MyLynch: Personalizing Lynch Syndrome Risks
Check out a resource called ‘MyLynch’, which provides people with Lynch syndrome with personal cancer risk estimates and ways to lower these risks! If you have Lynch syndrome, go to the following link to learn more about this resource and to get your personalized risk estimates:https://hereditarycancer.dfci.harvard.edu/mylynch/ You can also check out a recent presentation by …
Permanent link to this article: https://inheritedcancer.net/post40425/
ICARE Social Media Post January 2025
VUS Pilot Study Recruitment Post
ICARE Social Media Post January 2025
VUS Pilot Study Recruitment Post
๐ฃ Are you or someone you know living with a Variant of Uncertain Significance (VUS) in an inherited cancer gene? We’re inviting you to enroll into ICARE to be considered for a valuable research effort focused on improving resources for those with a VUS result. When you participate in ICARE, you’ll:โ๏ธ Be considered for this …
Permanent link to this article: https://inheritedcancer.net/post10425/
ICARE Newsletter Fall 2024
Community Spotlight: The Patient and the Researcher Shares Her Uncertain Future and Lessons Sheโs Learned
ICARE Newsletter Fall 2024
Community Spotlight: The Patient and the Researcher Shares Her Uncertain Future and Lessons Sheโs Learned
By Marleah Dean Kruzel, PhD, BRCA2 Previvor When I was eight years old, my mother found a lump in her breast โ barely noticeable. For a few years, I watched her undergo chemotherapy, radiation, and a prophylactic mastectomy and reconstruction. Since then, my maternal aunt and grandmother also fought breast cancer, and we learned my …
Permanent link to this article: https://inheritedcancer.net/icare-newsletter-fall-2024-community-spotlight-the-patient-and-the-researcher-shares-her-uncertain-future-and-lessons-shes-learned/
ICARE Social Media Post August 2024
ICARE Overview Video
ICARE Social Media Post August 2024
ICARE Overview Video
Learn more about the Inherited Cancer Registry (ICARE) by watching an exciting presentation by student researcher, Reagan Sellers, who provides information about the history of ICARE, what being an ICARE participant entails, our various education and engagement efforts, and the focused research studies being conducted through ICARE. Check out the full video on our YouTube …
Permanent link to this article: https://inheritedcancer.net/post82824/
ICARE Social Media Post January 2024
Hereditary Cancer Genetic Testing Educational Video
ICARE Social Media Post January 2024
Hereditary Cancer Genetic Testing Educational Video
Want to learn more about genetic testing for inherited cancer? We use patient stories to give information about testing, its possible value to individuals and their family, and ways to access resources to learn more about getting tested. Check out the video here: http://tinyurl.com/genetictestingvideo To get free personalized information about hereditary cancer risk and testing, …
Permanent link to this article: https://inheritedcancer.net/post11724/
ICARE Newsletter Fall 2023
Ask the Expert
ICARE Newsletter Fall 2023
Ask the Expert
This question was addressed by Kelly Taylor, MS, LCGC, a licensed and certified genetic counselor with expertise inresearch genetics and hereditary cancers at the Vanderbilt Hereditary Cancer Clinic. If you have a question you wouldlike addressed, please email the ICARE team at ICARE@vumc.org for consideration in future newsletters. Q: I have Lynch Syndrome and an …
Permanent link to this article: https://inheritedcancer.net/icare-newsletter-fall-2023-ask-the-expert/
ICARE Social Media Post April 2023
Applying the Framework for Interventions to Increase Family Communication
ICARE Social Media Post April 2023
Applying the Framework for Interventions to Increase Family Communication
A new study ๐ฏ๐ ๐ผ๐๐ฟ ๐๐ฒ๐ฎ๐บ used the Framework for Developing and Evaluating Complex Interventions (FDECI) to evaluate an intervention to improve family communication of positive genetic test results for inherited cancer. The first FDECI phases were beneficial for improving the intervention and planning for continual effectiveness and future implementation phases. Use the link in …
Permanent link to this article: https://inheritedcancer.net/post41023/
ICARE Social Media Post October 2022
CanRisk Tool
ICARE Social Media Post October 2022
CanRisk Tool
Have you heard of the CanRisk Tool?The CanRisk Tool provides health care professionals a user-friendly resource to carry out breast and ovarian cancer risk predictions. It is the first freely accessible cancer risk prediction program!Read the full article at the link: https://pubmed.ncbi.nlm.nih.gov/33335023/ Reference: Carver et al. Cancer Epidemiol Biomarkers Prev. 2021 Mar;30(3):469-473. PMID: 33335023.
Permanent link to this article: https://inheritedcancer.net/post100722-2/
ICARE Social Media Post May 2021
Breast Cancer Awareness Medical Minute
ICARE Social Media Post May 2021
Breast Cancer Awareness Medical Minute
In recognition of ๐ช๐ผ๐บ๐ฒ๐ป’๐ ๐๐ฒ๐ฎ๐น๐๐ต ๐ ๐ผ๐ป๐๐ต, listen to our colleague, Dr. Sonya Reid, talk about the importance of mammography for the early detection of breast cancer! To learn more, check out the American Cancer Society’s Recommendations for the Early Detection of Breast Cancer at: https://www.cancer.org/cancer/breast-cancer/screening-tests-and-early-detection/american-cancer-society-recommendations-for-the-early-detection-of-breast-cancer.html
Permanent link to this article: https://inheritedcancer.net/post52421/
ICARE Social Media Post April 2021
Komen Disparities Resource
ICARE Social Media Post April 2021
Komen Disparities Resource
Check out Susan G. Komen’s “๐๐ป๐ผ๐ ๐ฌ๐ผ๐๐ฟ ๐๐ถ๐๐๐ผ๐ฟ๐, ๐๐ป๐ผ๐ ๐ฌ๐ผ๐๐ฟ ๐ฅ๐ถ๐๐ธ” resource, which outlines disparities in breast cancer, how to understand your risk, and recommended screening and management practices. To learn more, please visit: ๐ https://www.komen.org/about-komen/our-impact/breast-cancer/health-equities-initiative/know-your-history/ ๐ https://blog.komen.org/news/black-history-month/
Permanent link to this article: https://inheritedcancer.net/post42021/
ICARE Social Media Post March 2021
Winter 2021 Community Spotlight
ICARE Social Media Post March 2021
Winter 2021 Community Spotlight
In every ICARE newsletter we feature a ๐ฐ๐ผ๐บ๐บ๐๐ป๐ถ๐๐ ๐๐ฝ๐ผ๐๐น๐ถ๐ด๐ต๐ to share their experience with inherited cancer. In the latest edition, Dave Dubin, co-founder of AliveAndKickn, shares his experience with Lynch Syndrome. Check out his full story at: https://inheritedcancer.net/community-spotlight/
Permanent link to this article: https://inheritedcancer.net/post31921/
ICARE Social Media Post February 2021
ICARE Winter 2021 Newsletter
ICARE Social Media Post February 2021
ICARE Winter 2021 Newsletter
The ICARE Winter 2021 Newsletter is now available! Check out this latest edition for recent research and clinical updates, a Q&A with a genomics expert, and an inspiring community spotlight piece. You can read the newsletter by visiting: https://inheritedcancer.net/wp-content/uploads/ICARE-2021-Winter-Newsletter.pdf. Please feel free to share with family members, friends, and/or your healthcare providers.
Permanent link to this article: https://inheritedcancer.net/post20921/
ICARE Social Media Post September 2020
Living with Lynch 2020 Virtual Patient Workshop
ICARE Social Media Post September 2020
Living with Lynch 2020 Virtual Patient Workshop
SJoin the Colon Cancer Coalition and AliveAndKickn for the Living with Lynch 2020 Virtual Patient Workshop on๐๐ฟ๐ถ๐ฑ๐ฎ๐, ๐ข๐ฐ๐๐ผ๐ฏ๐ฒ๐ฟ ๐ต๐๐ต ๐ณ๐ฟ๐ผ๐บ ๐ญ๐ฝ๐บ-๐ฑ๐ฝ๐บ ๐๐ง to hear unique patient perspectives and the latest information from experts on Lynch syndrome. Visit https://www.livingwithlynch.org/2020-living-with-lynch to register for this free workshop today!
Permanent link to this article: https://inheritedcancer.net/post92920/
ICARE Social Media Post September 2020
ICARE Summer 2020 Newsletter
ICARE Social Media Post September 2020
ICARE Summer 2020 Newsletter
The ICARE Summer 2020 Newsletter is now available! Check out this latest edition for recent research and clinical updates as well as a Q&A with a nationally renowned clinical geneticist from Vanderbilt-Ingram Cancer Center. You can read the newsletter by visiting: https://inheritedcancer.net/wp-content/uploads/ICARE-2020-Summer-Newsletter.pdf Please feel free to share with family members, friends, and/or your …
Permanent link to this article: https://inheritedcancer.net/post91620/
ICARE Social Media Post August 2020
CDC Resource for Free Breast Cancer Screening
ICARE Social Media Post August 2020
CDC Resource for Free Breast Cancer Screening
We are here to help! Our followers asked us to provide information about screening resources for women with hereditary breast cancer. We would like to make folks aware about a CDC program that provides free breast cancer screening for women who are uninsured and underinsured. โฃโฃ โฃโฃ Check out more information at: https://www.cdc.gov/cancer/nbccedp/ โฃโฃ
Permanent link to this article: https://inheritedcancer.net/post81120/
ICARE Social Media Post July 2020
Racial Inequalities in Genetics
ICARE Social Media Post July 2020
Racial Inequalities in Genetics
[ngg src=”galleries” ids=”1″ display=”basic_slideshow” arrows=”1″ show_thumbnail_link=”0″]It is important to talk about racial inequalities in healthcare as it affects the care received among Black patients. Through our research efforts, we not only want to address the issue of racism but also think about ways to make healthcare more equitable. A recently published study including our research …
Permanent link to this article: https://inheritedcancer.net/post72120/
ICARE Social Media Post March 2020
Study Based on ICARE Participants with ATM and CHEK2 Mutations
ICARE Social Media Post March 2020
Study Based on ICARE Participants with ATM and CHEK2 Mutations
Women with ATM and CHEK2 mutations have a lifetime breast cancer risk greater than 20%, which is the threshold at which screening through a breast MRI is recommended. A recently published study based on ICARE participants with ATM and CHEK2 mutations suggested that most female family members of ATM and CHEK2 mutation carriers do not …
Permanent link to this article: https://inheritedcancer.net/post32020/
ICARE Newsletter Winter 2020
New Study Based on ICARE Participants with ATM & CHEK2 Mutations
ICARE Newsletter Winter 2020
New Study Based on ICARE Participants with ATM & CHEK2 Mutations
We are excited to tell you about our recently published results based solely on data from ICARE participants with ATM and CHEK2 mutations. Our findings suggest most female family members of ATM and CHEK2 mutation carriers do not qualify for breast MRI screening based on family cancer history alone. This emphasizes the need to share …
Permanent link to this article: https://inheritedcancer.net/icare-newsletter-winter-2020new-study-based-on-icare-participants-with-atm-chek2-mutations/
ICARE Social Media Post November 2019
Educational Resources: The Family Link Between Breast and Ovarian Cancer in Black Women
ICARE Social Media Post November 2019
Educational Resources: The Family Link Between Breast and Ovarian Cancer in Black Women
The differences seen in access to healthcare across different racial groups are known as health disparities. To address the gap in awareness, we have pursued efforts to raise awareness about inherited breast cancer among African Americans. We are excited to introduce you to another invaluable resource, the Breast Cancer Genetics Research and Education for African American …
Permanent link to this article: https://inheritedcancer.net/post11119/
ICARE Social Media Post September 2019
Family Sharing Resources: GeneSHARE
ICARE Social Media Post September 2019
Family Sharing Resources: GeneSHARE
With the tremendous advances in gene-based care among those with inherited cancer risk, we are trying to develop tools and strategies to make it easier for more people to benefit from genetic education and testing. We are proud to introduce you to GeneSHARE, a free online toolkit for YOU, to help share positive test results …
Permanent link to this article: https://inheritedcancer.net/post91319/
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